Sjögren’s (“SHOW-grins”) is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies, and lymphomas.
Although many patients experience dry eyes, dry mouth, fatigue and joint pain, Sjögren’s can also cause dysfunction of organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system. Patients also have a higher risk of developing lymphoma. Today, as many as four million Americans are living with this disease.
With upwards of 4,000,000 Americans suffering from Sjögren’s, it is one of the most prevalent autoimmune diseases. Nine out of 10 patients are women.
About half of the time Sjögren’s occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as rheumatoid arthritis, lupus, or scleroderma.
Sjögren’s is a systemic disease, affecting the entire body. Symptoms may remain steady, worsen, or, uncommonly, go into remission. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatment are important — they may prevent serious complications and greatly improve a patient’s quality of life.
Since symptoms of Sjögren’s mimic other conditions and diseases, Sjögren’s can often be overlooked or misdiagnosed. On average, it takes nearly 3 years to receive a diagnosis of Sjögren’s. Patients need to remember to be pro-active in talking with their physicians and dentists about their symptoms and potential treatment options.
Since the disease was first identified in 1933 by Dr. Henrik Sjögren, it has been proven to affect virtually every racial and ethnic group. General awareness about Sjögren’s is still lacking and increased professional awareness is needed to help expedite new diagnoses and treatment options.
Newly diagnosed patients may find the video Sjögren’s: A Place To Begin to be a helpful resource when starting your education on this debilitating disease:
When a person is diagnosed with Sjögren’s, they often don’t know where to begin. This program will introduce you to three Sjögren’s patients who will share their journey with you. In addition, you will hear from Sjögren’s experts about the causes, treatments, and manifestations of Sjögren’s. From there, we hope you will have a place to begin as you develop a partnership and treatment plan with your physician.